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Links

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Antenatal Results and Choices (ARC)
ARC is the only national charity which provides non-directive support and information to expectant and bereaved parents throughout and after the antenatal screening and testing process.
www.arc-uk.org

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British Isles Network of Congenital Anomaly Registers
A group of regional and disease-specific registers collecting information about congenital anomalies occurring in the UK and Republic of Ireland.
www.binocar.org

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Down Syndrome Association
UK DS association site.
www.downs-syndrome.org.uk

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Down Syndrome Education International
Transforms the lives of young people with Down syndrome through better education.
www.dsinternational.org

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Down Syndrome Education Online
Comprehensive information about Down Syndrome including articles, books and scientific papers.
www.down-syndrome.org

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Down Syndrome International
A UK based international charity comprising a membership of individuals and organisations committed to ensuring quality of life and human rights for all people with Down syndrome.
www.ds-int.org

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Down Syndrome Research Foundation UK
A charity to help improve the outcome of all people born with Trisomy 21.
dsrf-uk.org

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Down’s Heart Group
A charity offering support and information relating to heart conditions associated with Down’s syndrome.
www.dhg.org.uk

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Down’s Syndrome Medical Interest Group
A network of doctors whose aim is to ensure equitable provision of medical care for all people with Down’s syndrome in the UK and Republic of Ireland.
www.dsmig.org.uk

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European Surveillance of Congenital Anomalies
A European network of population-based registries for the epidemiologic surveillance of congenital anomalies.
www.eurocat-network.eu

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National Down Syndrome Society
To be the national advocate for the value, acceptance and inclusion of people with Down syndrome.
www.ndss.org

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Newlife Foundation for Disabled Children
Disabled children have been at the heart of the charity since 1991.  As more babies and children survive conditions, accidents and infections etc. more children face enduring disability.  Newlife Foundation cares for all disabled and terminally ill children.
www.newlifecharity.co.uk

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Office for National Statistics
A source for national statistics data for England and Wales
www.statistics.gov.uk

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OMIM
Online Genetics site with DS entry
www.ncbi.nlm.nih.gov/omim  

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Support Organisation for Trisomy 13/18
Helping those affected by trisomy 13/18, Patau’s and Edwards’ syndrome and related disorders through a prenatal diagnosis, termination, birth of a baby, caring for a child and bereavement.
www.soft.org.uk

 
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NDSCR logo: links to NDSCR home page
Updates
BINOCAR Annual Report 2010 (BINOCAR site)
J. Morris and E. Alberman, Trends in Down's syndrome live births and antenatal diagnoses in England and Wales from 1989 to 2008: analysis of data from the National Down Syndrome Cytogenetic Register, British Medical Journal, 2009:339;b3794, doi:10.1136/bmj.b3794
by Wolfson Institute Website Manager © Queen Mary, University of London 2012
Centre for Environmental and Preventive Medicine, Wolfson Institute of Preventive Medicine, Barts and The London, Charterhouse Square, London EC1M 6BQ Tel: 020 7882 3850 Fax: 020 7882 6270